Just4Children are raising funds so Wilson can have life changing SDR surgery which may give him the chance to walk unaided one day!
Wilson was born prematurely at 30 weeks in January 2016. At 13 months he was diagnosed with PVL which has led to a diagnosis of quadriplegic cerebral palsy. He has difficulties with muscle control, balance and coordination.
He has spasticity in his body which means that simple things such as sitting without support, crawling or walking is extremely difficult for him and he is unable to do all of these on his own. He is incredibly determined and tries so hard every day to learn these things! Wilsons big sister is just under 1 year older than him and he is always watching her and wanting to do everything that she can.
Just4Children need to raise £75,000 so that Wilson can have life-changing Selective Dorsal Rhizotomy (SDR) surgery. SDR is now available on the NHS for grades 1-3. However with Wilson being a grade 4, this is not an option for him. We have however now be accepted to have the Surgery at Alder Hey’s Children hospital with Dr Pettorini which is due to take place in March 2020. Dr Pettorini believes Wilson would be a great candidate for the surgery and we will see instant results. The money raised will pay for the surgery, aftercare, a prolonged course of physiotherapy and any specialist equipment he might need.
Our wish is that Wilson will be free from the pain that the spasticity causes and one day be able to sit up on his own, walk and maybe even run alongside Ava playing just as a child should be able to. Without the surgery Wilson doesn’t have a chance of doing these things. We want him to have the chance to do the things we all take for granted.
To follow Wilson’s journey:
Thank you for taking the time to read Wilson’s story.