Just4Children are fundraising for Adam to receive SDR surgery and pots op intensive rehabilitation therapies so one day he can jump, run and play like any other child and lead a more fulfilling life.
Adam is 5 from Manchester and has cerebral palsy. He needs selective dorsal rhizotomy or SDR surgery to reduce the spasticity in his lower limbs.
Adam was born at 31 weeks and kept in an incubator connected to a mechanical ventilator in intensive neonatal care unit. Adam was diagnosed with Periventricular Leukomalacia in the brain which mean there is some of his brain cells died.
Due to this Adam was delayed in his milestones. An MRI scan then confirmed that he had cerebral palsy and a development delay coupled with visual impairment.
We manage this as best we possibly can, which involves many trips to hospitals and physio sessions around the world in the UK, Germany, Turkey and Egypt.
After a very intense assessment of Adam by Dr T S Park, the neurosurgeon in St. Louis, Missouri, he was considered right for SDR surgery, a surgical procedure that aims to reduce spasticity in the lower limbs.
Adam has a lot of spasticity which escalates over time as a result of bone growth while he also suffers from muscle hardness and tendons shortening which often leads to rigidity and stiffness of joints. SDR is the miracle which will prevent complications and is effective in treating spasticity by cutting the nerve rootlets in the spinal canal.
SDR is an amazing life change operation for a cerebral palsy child. It will improve Adam’s quality of life and mobility and will make him more confident and happy. He will be able to stand alone and take his first steps in his life.
SDR is a complex surgical procedure followed by a very intensive rehabilitation period of several years. So, the procedure will just be the start.
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