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Millie’s Journey with Syringomyelia

Just4Children are fundraising for Millies spinal surgery in Barcelona to stop progression and relieve her syringomyelia symptoms. In addition, regular therapy and specialist equipment will help Millie progress and ease her discomfort.
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Millie’s Journey with Syringomyelia

Millie is almost 2 years old and lives in Yorkshire. She was born at full term with no health concerns until she failed to reach her gross motor milestones. As Millie has grown, it’s become clear she’s unable to effectively use her legs due to spasticity. She uses a standing frame as she can’t stand independently and gets around mainly by commando crawling. She’s a determined little girl, works hard on her home physio and always has a smile on her face.

Following months on waiting lists, Millie’s MRI results confirmed that she has syringomyelia, a disorder in which a fluid-filled cyst forms within the spinal cord. We are fundraising to take Millie to an institute in Barcelona which specialises in the disorder. They intend to perform a spinal surgery to release pressure on the spinal cord in order to stop the disorder from progressing further, which may also relieve her current symptoms giving her a chance to learn to walk and become more independent. The procedure comes at a cost of approx £20,000 and isn’t available on the NHS.

So, we are asking for help, which isn’t an easy thing to do but you will do anything for your child and we need this surgery to give Millie hope for a better future. If you can donate any small amount towards her surgery and physio and equipment costs or even just share this link, we would be forever grateful.

Thank you for reading this and for all our friends and family who have already been supporting us on our journey.

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