Live Laugh Love Lola
Just4Children are fundraising to raise money to help towards Lola’s therapies, equipment and any treatment she may need that is not readily available on the NHS.
Lola Jennifer was born 5 weeks early in Inverness on 17th January 2015 weighing 5lbs 4oz. She spent some time in Raigmore Hospital in their special care baby unit.
It became obvious at 6 months she wasn’t hitting developmental milestones. At this time Lola was not able to sit up, was not properly weaned nor talking. Doctors thought she had leukodystrophy, a life limiting condition. Several months went by and at a checkup they did a complete 180. Lola was making progress and things started to look up.
However, Lola is now 9 and has been diagnosed with dyskinetic cerebral palsy, alongside an undiagnosed complex genetic duplication, gastroparesis and a neuropathic bladder. She is now fed through her jejunum overnight.
She still has a big fight on her hands every day, but she is feisty and nothing gets her down!
Thank you for your support.
Info for donors