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Life with a little T

Just4Children are fundraising to give Tilly ongoing therapies, specialist equipment and potential SDR surgery to manage her symptoms and reach her full potential
£33119
Total raised
66%
£50,000.00
Target
Donate Fundraise

44 donations

Life with a little T

Just4Children are fundraising to give Tilly ongoing therapies, specialist equipment and potential SDR surgery to manage her symptoms and reach her full potential

Tilly is aged 2 from Aberdeenshire. On 10th June 2020, our beautiful little Tilly joined the world. Born 9 weeks premature, we knew we had a bumpy road ahead of us, however we never realised what lay ahead of us and just how much our lives would be turned upside down

At 2 weeks old Tilly was diagnosed with Periventricular Leukomalacia (PVL), a type of brain injury affecting the white matter around the ventricles, typically occurring as a result of a lack of blood or oxygen to the brain. The doctors gave no words of reassurance and instead told us to take T home and enjoy her

Tilly had a rocky ride through NICU and later head scans revealed the PVL had worsened and we were dealing with a severe brain injury. When T was discharged from the NICU, we were told that severe Cerebral Palsy was nearing certainty

In May 2021 T was diagnosed with Spastic Diplegic Cerebral Palsy. She also has airway disorders and gastrointestinal issues. She is a frequent flyer to hospital, and the strongest little girl we know

In spite of the challenges, T is defying the odds. She eats orally, has a vocabulary of around 70 words, and the most infectious smile. At 29 months, she has the physical ability of a 6–9 month old. She depends on therapies and equipment provided by both the NHS and private professionals across the UK to help her progress physically and manage her symptoms to ensure she has the best chance to live a life with no limits

We are so grateful for any support we receive as we embark upon our fundraising journey for Just4Children to ensure we can provide everything Tilly needs, from therapy, to specialist equipment and, all going well, life changing SDR surgery. To give T independence, is our biggest dream and hopefully with your help, T will achieve her own dreams someday

Tilly has taught us to live with hope in our hearts, and fundraising through Just4children will allow us to give that hope for independence back to T, turning her own little dreams into reality

 

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Application for support