Just4Children are fundraising to adapt a home to help Lexie to live more independently.
Lexie lives in Cranleigh, Surrey. She has a rare genetic condition called Timothy Syndrome which runs alongside severe learning disabilities, autism and epilepsy. Timothy syndrome is characterized by a heart condition called long QT syndrome, which causes the heart (cardiac) muscle to take longer than usual to recharge between beats.
At 15 years old she is unable to do what children of her age are able to. Lexie needs support to dress, wash, feed and complete most everyday tasks we all take for granted.
Lexie also has severe anxiety and having the mental age of a much much younger child she suffers with challenging behaviour and needs lots of support to keep herself and her siblings safe.
Just4Children are raising money to create Lexie her own accessible bathroom, safe bedroom and sensory space at home. She will also need specialist equipment. Lexie desperately needs her own space as she has very complex needs, anxiety, epilepsy and needs 24 hour support as she wakes in the night, has seizures in her sleep and needs help going to the toilet.
Please help us reach the goal of making Lexie’s life a bit easier for her as she deserves it.