Just4Children are raising funds so Wilson can have life changing SDR surgery which may give him the chance to walk unaided one day!
Wilson was diagnosed with PVL at 13 months old which has lead to a diagnosis of Cerebral Palsy, he is now two years old. He has difficulties with muscle control, balance and coordination. His legs have a tendency to be stiff and go rigid in extension, particularly when he is tired or working hard. This makes simple things, such as crawling, cruising and even sitting, very difficult for him. He is not yet able to sit, crawl, stand or walk independently, but he is so determined and tries so hard, Wilsons big sister is just under 1 year older than him and he is always watching her and wanting to do everything that she can!
Our aim is to raise £100,000 for Just4children so that Wilson can have life-changing Selective Dorsal Rhizotomy (SDR) surgery which will remove or reduce the spasticity in his legs so that he can move more freely. SDR is not yet routinely available in the UK on the NHS but we have applied to the world leading paediatric neurosurgeon Dr T S Park at the St Louis Children’s Hospital in Missouri. The money raised will pay for the surgery, aftercare, a prolonged course of physiotherapy and any specialist equipment he might need.
Our wish is that Wilson will be free from the pain that the spasticity causes and one day soon he can sit up on his own, walk and maybe even run alongside Ava playing just as a child should be able to. We just want him to have the chance to do the things we all take for granted.
To find out more and follow Wilson’s journey:
We are raising money for Just4children, a registered charity (no. 1164473) which offers hope to the families of children in the UK with medical conditions who need specialist surgery, treatment, therapy and equipment in order to free them from suffering, giving a better quality to their young lives. All of Wilson’s funds will be kept securely with them and all invoices for his surgery, physiotherapy and equipment paid directly by them.
Thank you for taking the time to read Wilson’s story and if you have any questions at all please don’t hesitate to contact us through our website or Facebook page.