Just4Children wish to provide Henry with life changing spinal surgery and intensive therapy for the next 3 years to give him the best chance of improving his comfort and mobility.
Henry is a 6 year old from Midsomer Norton, Somerset who loves to be independent and making people smile. At 12 months old he was diagnosed with cerebral palsy spastic diplegia which most noticeably affects Henry’s lower limbs making him unable to stand or walk unaided. This has never stopped Henry aiming for better mobility and independence with his determined nature helping him along the way.
Henry has received weekly therapy since diagnosis which has become a big part of his life, teaching him the skills to sit, crawl, walk with a walker and now learning to walk with just sticks thus increasing his stamina to go even further. These are skills we all take for granted but Henry has to work extra hard to achieve.
Just4Children are fundraising to provide Henry with life changing spinal surgery (Selective Dorsal Rhizotomy) and continued, regular therapy to build on his existing skills and more importantly to increase his balance, strength and coordination.
In August 2019 The Portland London confirmed Selective Dorsal Rhizotomy would be beneficial for Henry. Selective Dorsal Rhizotomy (SDR) surgery is a procedure that treats muscle spasticity caused by abnormal communication from the brain to the muscles. It achieves this by cutting the nerve rootlets in the spinal cord, thus reducing spasticity while improving the range of motion and functional mobility.
Henry deserves the same independence and mobility as any other 6 year old boy.