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Albert’s Neuro Rehab Therapy

Just4Children wish to fund therapy at Blue Skies Ahead to help with Albert’s significant developmental delays and low tone caused by his neurological disorder.
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Albert’s Neuro Rehab Therapy

Just4Children wish to fund therapy at Blue Skies Ahead to help with Albert’s significant developmental delays and low tone caused by his neurological disorder.

Albert is six months old and lives with his mum, dad and sister in Liverpool.

From the day Albert was born he was having seizures, and by day 3 of his life things had progressed so quickly that he was in paediatric intensive care. The doctors struggled to work out what was causing these seizures that they could not seem to stop, but after genetic testing Albert was found to have a mutation on his SCN2A gene which causes him severe drug-resistant seizures, profound psychomotor delay, visual impairment, and unfortunately a short life expectancy. His condition is called Early Infantile Developmental and Epileptic Encephalopathy.

Albert spent the first few months of his life on the neurology ward of Alder Hey hospital, having up to 70 seizures a day, but his parents are doing what they can to make the most of his better times at home.

Albert receives some physiotherapy and occupational therapy on the NHS, but due to the extensive help he needs his parents have sought out specialist private therapists to help Albert achieve his best possible potential. He currently does not have head or trunk control, cannot reach for toys or objects, and his brain struggles to process what his eyes are seeing. He has also retained many of his newborn primitive reflexes.

By attending Blue Skies Ahead specialist neurological rehabilitation therapy weekly we hope that Albert is able to develop towards a better, and more comfortable, quality of life. Albert is a very complex little boy and he needs specialist therapists who can understand his particular challenges, and therefore implement exercises and routines that work for him and his unique brain.

We would like to start raising money for Just4Children to provide Albert with these specialist private therapies to help him live his best life and make the most of the abilities he has. All funds received by this campaign will be used directly on his therapies.

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