The Law must change!
‘Rosie’s life was saved by a heart transplant but it almost came too late – the law must change’
Sara and Barry Day were shocked to discover their daughter Rosie was not on the waiting list for a new organ because the youngster was not considered ill enough.
It may not seem like Rosie Day has a lot to smile about.
Diagnosed with heart failure when she was just two years old, her parents were told she would need a transplant within six months to have any hope of survival. But mum Sara and dad Barry were shocked to discover she was not on the waiting list for a new organ because the youngster was not considered ill enough. A shortage of donor organs meant that Rosie would have to get even sicker before she was eligible for a new heart.
She eventually became so poorly that her heart stopped beating altogether.
Rosie was given a mechanical heart to keep her alive until a suitable donor one was found, but the year-long wait meant she suffered numerous strokes, which left her with brain damage.
Although Rosie, now four, cannot walk or talk, her parents count themselves as lucky because their little girl is still alive, still fighting and, most incredibly of all, still smiling.
Now Sara, 39, and Barry, 44, are backing the Daily Mirror’s Change the Law for Life campaign for an opt-out organ donor register to help save lives.
Sara, of Maldon in Essex, says: “To be told that Rosie’s heart was failing but she still wasn’t ill enough to be placed on the waiting list was so hard to comprehend.
“If only we’d found that heart a month earlier, she might have something approaching a normal life ahead of her. I know I will likely be her carer for the rest of her life.
“That is incredibly sad, but it’s still fantastic to have her here and smiling.”
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