Super Ernie

Just4Children are fundraising to provide Ernie with targeted specialist care and equipment to enable him to live to the best of his ability with his Cerebral Palsy.

£6824.94
Total raised
45.50%
£15,000.00
Target
Donate Fundraise

102 donations

Just4Children are fundraising to provide Ernie with targeted specialist care and equipment to enable him to live to the best of his ability with his Cerebral Palsy.

Ernie is our 3-year-old superhero from Little Clacton in Essex. He was born prematurely at 30 weeks weighing 3lb 11oz and had a Grade 3 Intraventricular Haemorrhage (bleed on the brain). He has amazed everyone, including his doctors, at what he has overcome so far with his benevolent superhuman powers of positivity.

During an NHS physiotherapy session when Ernie was 2 years old, his Physiotherapist noticed signs and characteristics of Cerebral Palsy. An MRI scan confirmed and formally diagnosed Ernie with Spastic Diplegic Cerebral Palsy. 

Ernie suffers from exaggerated reflexes in the legs, scissor gait, increased muscle tone, tense and contracted muscles, stiff and jerky movement, hyperextension and hyperflexibility. This causes unsteady movement, poor balance and poor coordination in his legs meaning he is currently unable to walk without aids; walkers, ankle foot orthosis (splints).

Ernie is a candidate for pioneering SDR surgery which could eliminate some of the characteristics he suffers, and allow him to live a more independent and fulfilling life.  This surgery comes with intense rehabilitation. Our NHS area is unable to provide the amount of support Ernie needs. 

We are fundraising for Just4Children to enable us, as parents, to give him the best care, therapies and equipment to allow Ernie to experience life as any little boy should.  

We would be so grateful to anyone wanting to help Ernie live his life and give him the opportunity to reach his full potential, leading a fulfilling and independent life even with a condition that can unfortunately hold a lot of children and adults back if they don’t have access to the best care and resources possible.

Ernie is the most determined and motivated little miracle, who with your help will become the most amazing super human!

See Ernie’s Facebook page



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