Spinal Surgery for Lily-May

Just4Children are fundraising to pay for a pioneering surgical technique to treat our Lily-Mays severe scoliosis.

Total raised
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222 donations

Recent donations

"From Jon & Faye McComish x"
£20.00 from Jonathan McComish
£5.00 from Mandy
£20.00 from Anonymous
"For Matt and Kath from Aunty Angela."
£20.00 from Kath Vale
"Donation for Kathryn with love from Jackie xx"
£10.00 from Jackie
£21.00 from Amy Legg and Phil Brown
"Well done Natasha Brown & friends - hope you reach your target x"
£10.00 from Karen Brown
"From lisa and danny brand x"
£21.00 from Danny Brand
"Well done everyone! x"
£10.00 from Katrina Steel
"Well done for all that great swimming...praying the surgery goes well x"
£20.00 from Laura Humphreys
"Sponsorship for Sarah Reynolds swim"
£52.50 from Gilly & Ralph
"Sponsorship collected by Sarah plus £10 additional sponsorship."
£30.00 from Anonymous
£21.00 from Anonymous
"Good luck to you all."
£20.00 from Steve Pemble
"Sponsorship for team Murrell- super job !"
£20.00 from Anonymous
"Well done Sarah and the rest of the team!"
£11.00 from Cherie Ames-Tull
"Well done all xx"
£11.00 from Christina George
"Well done Sarah and everyone involved xx"
£10.00 from Helen Wilson
"Well done Sarah Reynolds!"
£11.00 from ANNA COOK
"Great work guys x"
£23.00 from Matty T
£HIDDEN from Tristan
"Thanks Pat and John for giving Matt and Kath a pound per length x"
£92.00 from Kath Vale
"£1 per length from Elizabeth Vale for Matt & Kath"
£92.00 from Kath Vale
"Well done John Saunders & family, good luck achieving the total needed"
£20.00 from Simon Walker
"Sponsorship from our AMAZING shoal collected and donated pre-swim. Thank you all x"
£263.00 from Kathryn Barnett
"Great going everyone. We wish Lily-May the very best xx"
£11.00 from Elaine Crouchman
"Wishing you well with fund raising."
£34.50 from Bob and Jill Youle
"What an amazing bunch of swimmers and such a fantastic achievement by all. Well done team!"
£52.50 from Anonymous
"Suburb effort today- good work😁"
£11.00 from Tina Sheriff
£10.00 from Leanne Knight
£HIDDEN from Anonymous
"Good luck Miss Satchell!"
£11.00 from Helen Radnor
"Keep going Kaylee and Belinda 🏊‍♀️🏅"
£11.00 from Jodie Farmer
"Good luck Belinda and Kaylee! X"
£11.00 from Jo
£40.00 from Anonymous
£HIDDEN from Mollie-Anne Hazell
£21.00 from Anonymous
"Good luck Lily-May, you are amazing!!!!"
£11.00 from Claire Yorston
"Good luck to all those little fish! Just keep swimming! X"
£10.00 from Julie Lee-Ranson
"Good luck Belinda and Kaylee. Xx"
£10.00 from Vicki
"My friends Kaylee and Belinda are swimming in aid of this fund raiser. Good luck girls. I hope you all raise lots of dosh xxx"
£5.00 from Suzanne Heron
£20.00 from Anonymous
£HIDDEN from Anonymous
"I work with Paul Rycraft and am happy to donate to this worthy cause. Good luck with the swim Paul!"
£10.00 from Kirsty Cowley
£21.00 from Claire Yorston
£11.00 from Anonymous
"Friend of Matt here wishing you all good luck"
£10.00 from Nick
"Good luck team lily may (lily May Kathryn Jamie bowyer lee Parker) Love Dave & Sue (Nanny & Grandad) xxxx"
£100.00 from Sue barnett
"Swim you dolphins, swim !! 🏊‍♀️🐬🏊‍♂️"
£23.00 from Martin & Clare
"Good luck to the Saunders crew in raising money for such a worthy cause xx"
£11.00 from James and Becky

Just4Children are fundraising to pay for a pioneering surgical technique to treat our Lily-May’s severe scoliosis.

Our daughter Lily-May is aged 13 from Maldon in Essex. She has unexpectedly and suddenly developed severe scoliosis. She is in awful pain, she finds daily activities challenging and is suffering from dizziness, nausea, tingling of the hands and feet and spasms.

Treatment for her double curvature in the U.K. is complete fusion in the thoracic spine and fusing 4 of the 5 lumber vertebrae with rods and bone grafts, effectively turning the moving spinal parts into one solid inflexible bone.

We have been advised of a new surgery developed and FDA approved in America that uses a non-fusion technique to straighten the spine by applying internal tethers. For this to work patients have to meet strict criteria, particularly for bone growth (our daughter is ideal skeletally very immature, measuring Risser 0/1 and Sanders 3), while she is also pre menses which is another restriction and although her curves are larger they still fall within the clinical guidelines. This technique is much less invasive, carries fewer risks regarding blood loss and paralysis, has a much faster recovery time and as no parts are fused it doesn’t appear to cause degenerative disc disease. But the biggest appeal is her back will remain intact and moving as intended with all vertebrae free to bend- she will retain almost all flexibility and movement.

This amazing alternative surgery is authorised at St George’s in the UK but only for privately paying patients. We are travelling to Germany to a top spinal paediatric surgeon who will perform the surgery.

Our daughter loves dance and sport and is a grade 4 competitive dancer. Lily-May also enjoys ballroom dancing, netball and swimming.

We want to fix the damage this terrible condition has caused but do as little harm as possible, so she can continue to do all things that brought her joy before. Without surgery the curve would progress quickly and affect internal organs and impact quality of life, movement and life expectancy. Surgery must happen to give Lily-May give the best possible outcome and quality of life.

Thank you

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