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office@just4children.org
0800 169 1601
Run, Ronnie, Run
Ronnie is a 3 year old from Saffron Walden, Essex. He has spastic diplegia cerebral palsy and Just4Children want to help Ronnie fulfil his dream to walk independently without tripping or falling over.
Ronnie was an unusual case to have suffered with spastic diplegia cerebral palsy as he was not a premature baby but born at 40 weeks and 2 days after a huge struggle during birth, and many complications along the way, he against all the odds was born with good asgar scores which to this day specialists are still in some shock to how this has happened.
Ronnie had suffered a brain haemorrhage during his ordeal, and as a result a bleed to his brain and when he thought he had everything thrown at him he had a seizure on his first night – not the greatest welcome into this world!
He had spent the first 16 days of his life in the care of Addenbrookes Hospital and continued to show his fight and determination to start what would be a very challenging life.
Ronnie was diagnosed with spastic diplegia cerebral palsy at age 2 but the signs before hand had pre warned us of this formality. Ronnie continued to fight on and his self belief and determination enabled him to do anything he wanted to do with nothing holding him back.
Ronnie was a late developer with walking and started at age 2 years and 2 months. Since then he has really come on from strength to strength and is a keen sportsperson. He attends swimming lessons, dance and music lessons weekly and is a member of ‘Cambridge In The Community’ cerebral palsy football team which is without doubt his biggest passion -and playing football is one of the many reasons behind his incredible journey and progression to date.
We have accepted that an operation known as selective dorsal rhizotomy (SDR) is our next and only remaining option which would literally change Ronnie’s life for the better and give him everything he deserves. Sadly this isn’t available on the NHS. Ronnie would also need a minimum of 18 months physiotherapy and rehabilitation.
Please help us help Ronnie walk without any more tumbles and help make a massive difference to his life.
