Teenage girl who hasn’t eaten for three years because of rare medical condition shares her dream menu
Ylena Green can enjoy the taste of her favourite dishes, like her mum’s cheesecake, lasagne, and macaroni and cheese, by tasting but then needs to spit it out in to a napkin.
Ylena Green could not tuck in to her Chinese takeaway, which she had ordered to celebrate her 18th birthday with friends, as she has not been able to eat for three years due to a rare, genetic disorder.
The teenager has Ehlers-Danlos Syndrome (EDS), which affects the connective tissue of the body.
Ylena can enjoy the taste of her favourite dishes, like her mum’s cheesecake, lasagne, and macaroni and cheese, by tasting – but then needs to spit it out in to a napkin.
Her stomach and intestines cannot digest food so she has to be fed via a line into her heart, which pumps liquid nutrients into her bloodstream.
So when she marked her milestone birthday in February, she could only taste her food by ‘sham eating’, as her family – and other EDS sufferers – call it.
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