Sick baby Jorja CAN leave Northern Ireland for Miami specialist
Sick Bangor baby Jorja Emerson can be discharged from a Belfast hospital to get specialist care that does not exist in Northern Ireland.
Her parents, Robbie and Carly, say the news is a huge step for the tot who was born with a rare condition, the side effects of which can be fatal.
And now the only hospital in the world that specialises in little patients like Jorja, has formally accepted her as a patient.
But there is a catch – and it’s a big one.
The family needs to raise £130,000 just to get Jorja, who is 17 months old, through the door of The Brain Centre at Miami’s Nicklaus Children’s Hospital in Florida.
The cost includes a medically-assisted flight to the US and her initial time in the unit where staff believe they can help the youngster prepare for a full life.
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