Fundraiser for teenager Ylena Lucy Green’s life-changing surgery
A Family is desperately trying to raise £90,000 to pay for their daughter’s neurosurgery abroad to treat her severe connective tissue disorder.
For the past three years, Ylena Lucy Green, 18, has been struggling with Ehlers Danlos Syndrome (EDS), causing her to suffer painful dislocations in all her joints and affecting her digestive system.
The specialist treatment she needs is not available in the UK and neurosurgery in Spain or the US is Ylena’s only option.
Ylena’s parents Letitia and Martin Green, from Wivelsfield Green, Haywards Heath, are desperately trying to raise the money through children’s charity Just4children.
Mrs Green, 58, who cares full-time for Ylena, said: “Ylena tries to put on a brave face, but the heartbreak of seeing her in pain every day is very hard for us.
“Ylena getting this surgery can’t come soon enough, but we’re very hopeful that we’ll get the support she needs from the public.
“She really only gets out for essential hospital appointments.
“Moving is so painful that she needs to be lifted into her motorised wheelchair by her dad.
“Every trip wipes her out and she can’t wait to get back home.”
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