Myla’s Journey

Just4Children is raising money for Myla's twice weekly occupational therapy which includes a 120 mile round trip, and also, any specialist equipment that is required to support her physical developmental needs.
£2517
Total raised
16%
£15,000.00
Target
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28 donations

Myla’s Journey

Just4Children is raising money for Myla’s twice weekly occupational therapy which includes a 120 mile round trip, and also, any specialist equipment that is required to support her physical developmental needs.

Myla is aged 18 months from Uttoxeter in Staffs. She was born at 25 Weeks + 2 Days at 780g (1 lbs 11 oz). Myla had a 14 week stay in Neonatal Care including an 8 week stay in Leicester, 4 weeks in Derby and a further 2 weeks in Derby. During Myla’s Neonatal journey she had many hurdles to overcome including Sepsis, a bleed on the brain, multiple failed extubations, 5 Blood Transfusions, suspected Meningitis, as well as the constant battle of trying to lower her oxygen requirement and breathe independently.

Myla left Neonatal care on the 5th January 2023. She was re-hospitalized on the 15th of January for 6 days, unfortunately requiring intubation which we later found out was due to contracting the human coronavirus. Myla was also re-hospitalized in February of 2023 for 5 days again due to a virus. Thankfully on this occasion she required CPAP only and not intubation.

For the next 4 or 5 months Myla was a happy baby developing at an acceptable pace albeit here weight stagnated and was not moving in an upwards trend. In July 2023 we noticed Myla was becoming less active and started to seemingly move backwards in her development. This was put down to viruses going around at the time. However, sickness started occurring after feeds gradually building to unmanageable levels. Myla was then re-hospitalized in August/September 2023 with Hypercalcemia. Hypercalcemia in babies has strong links with a failure to thrive. We spent 3 weeks getting Myla back on track and growing again.

Present day, Myla has put on 3kg + since and is a happy baby again, although she can still not sit unaided, crawl or talk which we raised as a major concern to our consultant. Following an MRI we now know Myla has a short corpus collosum and the folds of her brain would not be deemed “normal”. This is where Myla’s occupational therapy at Blue Skies Ahead in Birkenhead has started as we want to ensure Myla has the best opportunity at a great and normal life. We now travel 120 miles round trip twice weekly to try and help Myla’s Brain to develop and grow!

Thank you for your support.

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