Just4Children are fundraising for Kylian who will benefit massively from therapy and specialist equipment, He is unable to sit up on his own, feed himself, and communicate as he is non-verbal and needs the correct people involved in his care to help support and develop his potential.
Kylian is 3 years old from Southport. His journey for a diagnosis started January 2020 when we noticed that things were not quite right. Fast forward to 6 months, many Alder Hey hospital appointments for different tests and an MRI scan, we received the news in the middle of lockdown 2020 from the consultant, words that haunt us to this day, that Kylian has brain damage from birth which has affected every area of his brain.
There is nothing we can do and we will be guided by Kylian.
Shortly after this it was confirmed that Kylian has Cerebral Palsy level 4, developmental global delay, (none verbal) hearing loss and Cerebral Visual Impairment. Kylian needs adult support 121 24/7. Since the day he was born Kylian has always been a fighter and continues to amaze us all.
Kylian’s future is currently unknown which is very daunting to us but one thing for sure Kylian is the most determined 3 year old who fights battles most of us can’t even imagine. However, we know we need to give him the best life and a happy life that he truly deserves. We would love to help Kylian reach his full potential and we understand from health professionals early intervention is key for him.
We would love to raise money for Just4Children to allow him to have therapy sessions including courses at Rainbow Hub, funding for treatment and future operations that may be required, disabled needs equipment and specialist toys which will hopefully help him interact, engage and help achieve milestones sooner. We are currently having to alter our family home to be more suitable to meet his needs too.
We cannot thank you enough for your support, love and donations (no matter how big or small that is). We hope to give Kylian the best life so he can reach his full potential and prove to us there is positivity in all of this!
Thank you again from the bottom of our hearts. It really does mean the world to us and I am more than sure kylian will repay you all in life with endless smiles and laughter.
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