Jude’s Giant Steps
Jude was born very prematurely and has a brain injury that has led to spastic diplegia cerebral palsy. Just4Children are fundraising for a life changing operation selective dorsal rhizotomy to help him walk.
Jude is a 5 year old surviving identical twin from East Sussex who was born at 31 weeks. He had suffered a stroke in the womb at 20 weeks when his twin brother died following a rare complication during the pregnancy.
Jude’s stroke caused a brain injury called peri-ventricular leukomalacia and this has led to spastic diplegia cerebral palsy. For Jude this means that he finds sitting and moving around as well as standing and walking to be extremely difficult and painful at times.
Just4Children are fundraising to support Jude to have a life changing operation called selective dorsal rhizotomy and the intensive physiotherapy program and any specialist equipment that is required afterwards. This major spinal surgery is not funded by the NHS and involves cutting spastic nerve fibres that are sending the wrong messages to his muscles.
Jude is a bright and loving boy who is responding well to early intervention yet he will need the operation to be pain free and to learn to stand and walk independently alongside his brother.