Jesse’s Journey

Just4Children are fundraising to help Jesse access therapies and equipment needed to improve his quality of life and reach his full potential. 

We are just at the beginning of Jesse’s journey. He is a 9 month old boy from Wantage in Oxfordshire and was born with severe brain abnormalities. Testing is still underway, but it is suspected that this is due to a rare genetic disorder. 

Jesse’s brain abnormalities impact upon every aspect of his little life. He has a cortical visual impairment, development delay and is currently fed via Nasal Gastric tube as he has an unsafe swallow. This is set to remain and he is due to have surgery in the summer to insert a permanent gastrostomy tube. Messages from Jesse’s brain cause muscle spasms and increased tone, meaning his body is stiff and rigid most of the time, with little mobility.  

We have been so fortunate to have a fantastic children’s hospital on our doorstep, but there are limits to what the NHS can provide. Jesse requires intensive physiotherapy, which is accessed privately, and as life goes on he will need further therapies and equipment to help him reach his full potential and allow him to be fully integrated and involved in family life. 

Jesse has two big brothers who adore him and give him endless amounts of love and affection. We want nothing more than to give Jesse the best quality of life possible, and we hope to one day see him interacting and playing with his siblings. 

Private therapies and specialist equipment are key to Jesse’s wellbeing and development, but they come at a high cost. 

We thank you for any donation you can make towards accessing these. 

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