Tel: 0845 458 8171
WellChild is the national charity for sick children. They help sick children and their families throughout the UK as they deal with the consequences of serious illness and complex conditions. They focus on three key areas – care, support and research.
Contact a Family
Helpline: 0808 808 3555
They provide advice, information and support to the parents of all disabled children, no matter what their disability or health condition.
Together for Short Lives
Helpline: 0808 8088 100
Together for Short Lives is the leading UK charity for all children with life-threatening and life-limiting conditions and all those who support, love and care for them. Theye support families, professionals and services, including children’s hospices.
Tel: 01799 541807
Fledglings is a national charity that finds and sells products that improve the lives of disabled children and their families.
Action for Sick Children
Helpline: Freephone 0800 074 4519
UK’s leading children’s healthcare charity, specially formed to see that children receive the highest standards of healthcare possible.
The Sick Children’s Trust
The Sick Children’s Trust believes that no child should be separated from their family while in hospital receiving treatment for serious illness. Their mission is to provide high quality home from home accommodation for families whose children are receiving hospital treatment for serious illness.
The Family Fund
The Family Fund provides grants to families with severely disabled children, based on families’ views and needs and is open to families with children and young people up to their 18th birthday who have a severe disability.
The Shared Care Network
Shared Care Networks short breaks support families caring for disabled children and can promote family stability and ease the strain which can build up in a family dealing with the demands of caring for a severely disabled child. They allow parents to spend time with their other children and benefit the disabled child by tackling social isolation.
The Children’s Trust
Tel: 01737 365 000
The Children’s Trust is the UK’s leading charity for children with brain injury. Every year they help thousands of children and families right across the country through rehabilitation, education, care and support.
Their Brain Injury Hub website provides information and advice to parents of children with acquired brain injury: www.braininjuryhub.co.uk.
Parents of Disabled Children
Families who have children and young people with special needs very often deal with similar life styles. They have all had concerns ranging from education, access to services, respite and other issues directly related to their children’s special needs. Parents of disabled children bring families together for friendship, to share information and to support one another.
Helpline: 0808 800 33 33
“We’re all about changing society for the better, so that disabled people and their families can have the same opportunities as everyone else. We work with disabled people and their families. We offer practical support – from information services to education and everyday care. We challenge assumptions about disability, we influence decision makers and we show what can be possible”.
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