Just4Children are raising funds for Sacha to have specialist therapies to get Sacha communicating again, and to enable him to climb and descend stairs.
Sacha is 4 and lives in Brighton. He has a rare genetic disorder called 2q37 deletion syndrome. This means he is likely to grow up with cognitive disabilities and physical difficulties. But the range of possible outcomes is wide, and there are many factors that can improve or worsen the prognosis.
Defying expectations, Sacha responded remarkably well to intensive blocks of paediatric therapy between ages 1 and 3: the first enabled him to stand for the first time; the second got him walking. Every round of therapy was a tangible boost not only to Sacha’s development but also to his happiness and confidence. Without these therapies, it would have been a much longer struggle for Sacha to reach such milestones.
Unfortunately, Sacha’s therapy programme was cut short by COVID-19, with more than a year’s worth of therapy unavoidably cancelled. The impact of this was palpable: Sacha became visibly depressed, shrinking into himself, unable to communicate; the dynamic developments that had been associated with his therapeutic interventions tailed off.
As COVID restrictions ease we are hoping to get Sacha’s therapy programme back on track. We are thus fundraising to cover a new round of therapy. Our immediate goals this time are to get Sacha communicating again, and to enable him to climb and descend stairs.
For more information on Sacha, 2q37, and how funds will be spent, please visit here