Just4Children want to raise funds for Daniel to receive specialised equipment for mobility and home adaptions as well as any therapies, aids or equipment to help him communicate his needs.
Our little Mole from Mole Valley, is a happy, cheeky, stubborn, joyous 3 year old who adores bubbles and dancing ducks. And quacky ducks. And singing ducks.
He also has Pitt-Hopkins Syndrome. An ultra rare genetic syndrome that means his life looks very different to other 3 year olds. He is not yet able to walk, may never talk and his severe learning difficulties mean he will need lifelong care.
Because of this, early intervention is absolutely essential to help him learn key life skills, communicate his needs and gain some independence.
To give our mole his best shot, we’re seeking specialist therapies, aids, equipment and home adaptions to give Daniel a voice and the freedom and mobility to get his very best start in life.
Unfortunately, much of this specialist care is just not available on the NHS at the moment and we would appreciate anything you can do to help him along his way. I can’t tell you how much he deserves it.