Tommy needs therapies and intervention such as Intensive Neuro Movement Therapy, brain plasticity therapy, equipment, home adaptions and adapted toys to give him a fighting chance to thrive.
This is Tommy. He 2 from Earlston in Berwickshire and smiling is his favourite. He blatantly laughs in the face of adversity.
In spite of Tommy’s happiness, he has been dealt a rough hand in the short time he has rocked our world and each and every day is a day of hard work. A literal fight in attempt to ensure his best possible future.
At 32 weeks Tommy and his identical brother Joe were born. Joe born still and Tommy fighting for his life. In the couple of days leading up to their birth, unknown to anyone, the twins became affected by Twin to Twin Transfusion syndrome (TTTS).
The situation was chronic. It happened and then it was too late. It was unexpected and immediate.
Unfortunately, Tommy was not left unscathed and as a direct result of the TTTS, he suffered a “catastrophic bilateral brain injury” and since has been diagnosed with Cerebral Visual Impairment, Global Developmental Delay, Cerebral Palsy and he is predominately tube fed via Gastrostomy.
Of course we know none of these conditions are curable. However, we also know all that early intervention can help and so are working hard in attempt to do what we can to help Tommy thrive. Tommy has so much potential it hurts.
The input and support Tommy receives from public services is a blessing. Those who work with Tommy work hard and care about his progress as passionately as we do, however some of things we do and want to do with Tommy are just not available via NHS, things which have strong evidence of success with other children and that we believe will help our boy…
Therapies and intervention such as Intensive Neuro Movement Therapy, brain plasticity therapy, equipment, home adaptions and adapted toys costs well over £10,000 per year.
Asking for help hasn’t been easy, however we are eternally grateful for any help you do give. Please be assured your help will absolutely give Tommy a fighting chance to thrive. Your help could literally change his life and ours.