Super Sofia’s Story

Sofia is 3 and lives in Chester. She has Diplegic Cerebral Palsy and her dream is to be able to walk completely independently.

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Sofia is 3 and lives in Chester. She has Diplegic Cerebral Palsy and her dream is to be able to walk completely independently.

Sofia was born at 24 weeks and 6 days with her identical twin sister Sienna after my waters had broken at 19 weeks and 6 days. The girls were so poorly and both born with Ecoli Sepsi that they needed maximum support for everything. Sienna’s lungs were just to underdeveloped and we had to make the heart breaking decision to withdraw care 7 hours later.

Sofia had a long journey ahead of her and was in hospital for 102 days. She has endured more than most have in a life time. She was oscillated which pumped 600 breaths a minute into her lungs, on 100% oxygen, had 11 blood transfusions, countless blood tests, 3 lumber punctures, a long line from her arm to her tummy and laser eye surgery in both eyes. Sofia had to have routine brain scans as she was born so early which showed damage had happened on the left side of the brain. Each scan seemed to bring more bad news.

Sofia had an MRI scan when she was discharged which showed damage on the right side of her brain too. We were heartbroken but we loved our girl no matter what and would do whatever it took to give her the best life possible.

Sofia’s life is not alike a typical toddler. It involves countless hospital appointments and daily physio that started at 7 months old but this has been key to help her brain rewire around the damage.

Sofia’s dream is to be able to walk, run and jump (especially in muddy muddles) independently and without splints.

In December 2019 we just felt we were stuck. Sofia wasn’t really making any improvements so we started to research other therapies to help. We started going to Blue Skies Ahead and they have played a huge part in helping Sofia to improve. They introduced us to Gallieo vibration training. Therapy and specialist equipment to help are key especially in the early years but come at a cost so any help is very much appreciated!

Thank you for reading Sofia’s story xx

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