Just4Children need to raise money for Lilly to have private physiotherapy, equipment and other therapies that will help her lead a more fulfilling life.
Lilly is aged one from Retford in Notts. She has cerebral palsy, global development delay, visually impairment and epilepsy.
Lilly was born at 39 weeks on the 8th September 2018. During labour she suffered from a lack of oxygen which is called (Hypoxic Ischemic Encephalopathy) causing her permanent brain damage. Shortly after her birth she started having seizures which resulted then in her being transferred to a specialist neonatal unit in a different hospital. Once there she was sedated until they could find the right medication to stop the seizures.
Thankfully, she hasn’t had any since but we have been told she could maybe develop them as she gets older.
On Lilly’s 4th day of life she wasn’t showing any improvement or sign of life and we were told that we may have to say our goodbyes to her as they thought she might pass away in the night. On the 5th day Lilly started to finally breathe using her own lungs and not on the ventilator.
Lilly had to have an MRI scan which showed most of her brain was damaged from the birth. We were told that she’ll maybe never be able to do anything but blink her eyes; that she’ll maybe never move or talk; that she’ll have fits on a daily basis; she may never feed herself; she may choke on her own saliva as she’ll never swallow anything and would need tube feeding; and many other things.
By day 6 Lilly was on put on high flow oxygen which amazingly she coped very well being on it. We finally were able to have our first cuddles with her which was the most wonderful feeling ever as we never thought we’ll ever be able to have her in our arms.
By the 7th day Lilly was taken off the oxygen and was transferred to our local hospital to carry on her care before we could all come home as a family.
Now at home at last Lilly needs regular physiotherapy to give her the chance to walk, sit up and help her to gain more strength. In addition we are advised that stem cell treatment will benefit her vision allowing her to see better. This is expensive therapy of course. Finally, a specialist pushchair and other portable equipment for days out and holidays will also hugely benefit Lilly.
Thank you for your support.