Just4Children need funds to support Isla Rose have the therapies and treatments she needs to help her lead the life she deserves.
Isla Rose is aged 4 from Lowton in Wigan.
Our beautiful little girl Isla was born with an infection called CMV (cytomegalovirus) that left her with brain damage and developmental delay which is now causing cerebral palsy. Isla cannot walk, and mainly uses makaton to communicate. Our little soldier has overcome many things since birth such as losing her sight and hearing.
The past 4 years have consisted of all physiotherapy, appointments, brain scans, heartache and a lot of set backs.
She has medication 3 times a day to help with the stiffness in her muscles that she has been on for around 2 years.The NHS have been absolutely amazing with Isla’s progress and have supported us since birth, but there just isn’t enough funding for what the physios and consultants are telling us Isla needs in order for her to walk.
So we have made the choice to go private to give Isla the best chance of getting on her feet. She has splints for her legs to support her ankles when standing as she can’t weight bare. London Orthotics Consultancy which is a specialist team of combined physios and orthotics, provide these splints which have proved amazing.
At our next NHS appointment Isla is being reviewed for Botox injections in her legs which will help reduce spasticity in her muscles. However, this is only temporary and lasts around 8 weeks a time.
We have looked into possible SDR (Selective Dorsal Rhizotomy) surgery at Alderhey hospital. SDR is effective in treating spasticity by cutting the nerve rootlets in the spinal canal that are sending abnormal signals to the muscles. Spasticity is the result of an abnormal communication between the brain and the nerves. Reducing this should also help with pain management and give Isla the best quality of life she deserves!
This operation comes with at least 18 months of intense physiotherapy and rehab to help Isla recover and give her the best chance of walking and being comfortable on her feet.
We are asking for your support of Just4Children to help Isla get her wish and get on her feet.
Thank you so much for taking the time to read our story.
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