Just4children are raising funds for Hira Naz aged 6 from Whitehaven to have a life changing operation SDR (Selective Dorsal Rhizotomy) in the US and all the post op therapies and specialist equipment she will need.
My daughter was born prematurely at 28 weeks gestation in Middlesbrough Hospital. When she came into the world she had bruising discolouration to her head, body and legs with bleeding in her eyes. She spent the first week of her life in intensive care, before being transferred to Whitehaven Hospital where she spent another couple of months in special care.
After her first birthday, we noticed that she had not made any progress in her development. We approached the GP with our concerns. She was not sitting up, crawling, standing or vocalising. We were referred for an MRI at Newcastle, to which they told us it had shown a reduced white matter volume, particularly posterior consistent with PVL.
We as a family were hoping for good news, but unfortunately after numerous of tests they confirmed that she had Bilateral Cerebral Palsy, as well as being developmentally delayed.
Like any parent, we wanted our daughter to be healthy and have the same qualities of life like everyone else. We are very grateful and blessed to have her and want the very best for her. We want to do everything in our will power to help her and hope that by giving her this chance of an operation It will give her a better quality of life and more chance of being able to move around more freely.
The SDR surgery will be performed by world renowned surgeon Dr Park at St Louis Hospital in the US. This surgery is a procedure that treats muscle spasticity caused by abnormal communication among the brain, spinal cord, nerves and muscles. It corrects muscle spasticity by cutting the nerve rootlets in the spinal cord that are sending abnormal signals to the muscles.
Following surgery Hera Naz will need several years of post op therapies and specialist equipment to keep making progress.
Please make Hera Naz’s Wish to Walk come true.
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