Cian is a 3 year old boy from Laois with Quadriplegic Cerebral Palsy. Just4Children need to access therapies, equipment and possibly surgery to help him fulfil his dream of being independent.
Hello, my name is Cian and I am 3 years old. When I was 8 months old my family were told I suffered a Periventricular Leumomalacia (PVL) Brain Injury which led to me having Quadriplegic Spastic Cerebral Palsy.
Having Quadriplegic Spastic Cerebral Palsy means that all my limbs are affected. The muscles in my arms and legs can get very tight and often cause me some pain. I work very hard doing physiotherapy and also do stretches plus other activities to help loosen my muscles while I wear splints on my legs. I have a stander and walking frame to help me weight bare and walk. However, my progress has been hampered at times due to epileptic seizures as I developed Epilepsy due to my brain injury.
I’m not able to do the things that most other children my age or younger can do. I cannot sit independently nor roll over or crawl. I am solely dependent on my parents to get me dressed, brush my teeth, feed me and put on my own shoes. To be able to sit, stand and walk independently would be all my dreams come true.
If I strengthen my core and my muscles, we can apply to see if I am a candidate for an operation called Selective Dorsal Rhizotomy (SDR). Having this operation would give me a greater chance of being independent and remove spasticity and tightness that my muscles have. This could help me walk on my own one day.
In order for me to get strong muscles and core I need to have intensive therapy with specialist equipment. In addition, I currently have therapy at a cost of approximately €5,000 a year. If I get my muscles and core strong enough I hopes to be deemed a candidate for surgery in America at a cost of approximately €100,000.
My family want to give me the best possible chance of independence they can, but this is a cost they just cannot meet by themselves and so we ask you from the bottom of our hearts to please help Just4Children raise as much money as we can to help me. Please help my wish come true, my mission to walk.