Ayden’s Journey to SDR and Beyond

Just4Children are raising funds for life changing SDR surgery which will help Ayden to walk independently.

£140
Total raised
0.28%
£50,000.00
Target
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9 donations

Just4Children are raising funds for life changing SDR surgery which will help Ayden to walk independently.

Ayden is aged 3 from Chigwell in Essex. He was born at full term with no known complications.

My first born, I left the hospital with my whole new world and no idea of the challenges to come. My first concerns came when Ayden didn’t learn to roll over and didn’t sit up until 8 months old, and even then he was not able to sit properly. After visits to the GP, I convinced myself I was just an anxious first time mum. However, when he wasn’t able to stand until 18 months I began to grow concerned.

At 19 months, we were eventually referred to a Neurologist who saw Ayden just before his second birthday. This is the first time any abnormalities in Ayden’s movement and muscle tone were noted. An MRI scan a few weeks later showed that Ayden did in fact have a type of brain damage called PVL, caused by a lack of oxygen at some point during pregnancy or birth. The Neurologist explained that we would most likely never know the cause of the damage and as a result of the PVL, diagnosed him with Cerebral Palsy.

One year on from the news that devastated our world, we are raising funds for Just4Children to support life changing surgery called Selective Dorsal Rhizotomy (SDR). We strongly believe that this surgery is the key to Ayden being able to one day walk independently by removing spasticity in his limbs. Unfortunately, it is not currently available on the NHS therefore this treatment needs to be paid for privately.

All funds raised will go towards the cost of the operation, crucial physiotherapy post surgery, and any equipment needed to aid Ayden’s recovery.

Thank you so much to everyone who has read our story. Your support means the absolute world to us and helps us get that little bit closer to our boy being able to walk and keep up with his little brother.

Please feel free to follow our progress on Instagram @aydens_steps

Harley xx

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