Yasmin is now busy trying to raise a further £6,000. Every penny raised will go towards a lightweight wheelchair, scans in spring and a follow up appointment to assess the fusion.
Yasmin’s life was saved by a specialist team of surgeons in Barcelona who performed two surgeries to fuse her neck and skull in June and November 2019. Although Yasmin’s life has been saved by this surgery by stabilising the vertebrae’s and releasing pressure from her jugular veins and spinal cord, she will always suffer pain at the fusion site.
Yasmin’s other conditions including Ehlers Danlos Syndrome, Mast Cell Activation Syndrome and Postural Tachycardia Syndrome are slowly deteriorating.
Even though the surgery was a huge success she still requires numerous scans and tests plus a return visit to the spinal team in Barcelona in May 2020.
Yasmin’s legs and ankles have continued to deteriorate, although she has an electric wheelchair she has found this very restrictive when trying to access shops and travel. Due to its weight Yasmin is unable to travel without assistance and has zero independence. A new chair will help give Yasmin the independence that any teenage girl craves.
In the long term the spinal team have indicated that Yasmin will require the rest of her spine to be fused, but we will focus on that when the time comes and do what is needed right now to give Yasmin as much of a normal life as possible.
Yasmin has a lovely team of NHS people who help with her conditions and whilst they don’t have the funding or expertise to fix Yasmin they have been amazingly supportive, both before and after surgery.
For more updates please follow us via facebook at Yasmin’s Journey
Follow our Facebook – Yasmin’s Journey