In June 2019, Mila, who has dystonic cerebral palsy, will be travelling to America to attend a private therapy centre for 3 weeks with the aim to help her on her journey to sit and move independently.
Mila was born naturally at full term following a complicated birth. Due to the complications encountered during labour Mila was unwell after birth and was transferred to NICU at Addenbrookes where she spent the first 2 weeks of her life. Here she underwent many investigations, the most significant being an MRI scan of her head which showed abnormalities in her brain.
Until she was 6 months old Mila developed the same as any other child, however it then became clear that she was in fact going to experience difficulties with many of her everyday activities. Currently Mila is unable to sit-up unaided and therefore she cannot crawl or walk. She doesn’t have much control over her hands or arms making daily activities like playing and eating a struggle.
Mila was referred to Great Ormond street where, at 17 months old, she was diagnosed with Bilateral Dystonic Cerebral Palsy. She has since had further tests, including a videofluoroscopy where it was discovered that Mila aspirates fluids into her lungs when she drinks. In March Mila had an operation to insert a gastrostomy tube into her tummy.
When it became clear that Mila was going to face challenges in reaching her milestones we began to find specialist equipment that would help her to reach these goals and make her everyday life a little easier. Although some of this equipment is funded by the NHS we will also need to purchase some by ourselves if Mila is to have the chance she deserves to learn how to sit, crawl and walk for herself. All of this, along with Mila’s weekly private physiotherapy sessions comes at a great cost which unfortunately we, as her parents, are just not able to fully cover.
We ask that if you have read this and would like to be a part of Mila’s journey to kindly make a donation on this page to go towards paying for her new equipment and ongoing physio. The saying every little helps has never meant more to us than it does now, and no matter how small a donation it really will be appreciated.