Let’s Get Ellis Active

Ellis was born with arthrogryposis - a term used to describe fixed joint and muscle weakness. We need your help for specialist treatment abroad.

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Ellis was born with arthrogryposis – a term used to describe fixed joint and muscle weakness. We need your help for specialist treatment abroad.

This is my Son Ellis. He is 3 years old from Leicester. Ellis was born with Arthrogryposis Multiplex Congenita.

Arthrogryposis Multiplex Congenita (AMC) is a term used to describe over 300 conditions that cause multiple curved joints in areas of the body at birth. It varies from person to person with the commonality being stiff joints and muscle weakness.

Ellis is affected in all four limbs and joints all over his body. This affects his day to day life as he is unable to use his limbs like most other children his age. This has impacted my whole family too.

It breaks our heart to see his sisters try their very best to do things for Ellis. Ellis can not just get up and go and be the 3 year old he deserves to be. Ellis does scoot around on his bum and he tries so hard to get up. He just needs this to surgery to give him this massive opportunity to walk!

Ellis has come such a long way since birth. He has shown great strength and determination and he continues to inspire us daily. The doctors told me not to expect a lot from him. But guess what, he’s proved them wrong and continues to every single day.

Ellis has had serial casting from two weeks old and two operations so far to try and straighten his feet to get them in a natural position. We use physio and stretching in his everyday life which is very crucial with this condition.

As parents we have done everything we can for Ellis for him to be where he is now. His knees are flexed and cannot stand unaided. And so, we have recently been in touch with a doctor in the U.S who specialises in his condition.

As medical care in America is extremely expensive. He’s agreed to do the operation in Poland. The cost of the operation is invoiced at £80,000. Doctors are confident that Ellis will soon walk. This is amazing and so overwhelming.

We need your support.

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