Help Sacha prove DNA isn’t destiny!

To fund intensive early intervention for Sacha, to help him overcome a rare genetic disorder.

£17913.63
Total raised
100 %
£18,000.00
Target
Donate Fundraise

106 donations

Recent donations

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£22.00 from Cara Tolmie
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£23.00 from Josefine Wikstrom
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£11.50 from Lois Leese
"Luck on the run and congrats on baby number two!"
£HIDDEN from Anonymous
"Go Rob! Love to you all x"
£30.00 from Amy De’Ath
"Viva Sasha and Rob and Zoe!"
£11.50 from Anders W
"Well done Rob and Zoe. Sorry I couldn't join you for the Hastings one."
£HIDDEN from Victoria Margree
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£100.00 from Nick and Helen
"Best wishes!"
£22.00 from Danica Trim
"Good luck!"
£21.00 from Robin Dunford
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£10.00 from Sue
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£30.00 from Anonymous
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£34.50 from Cass Gould van Praag
"Hope it goes well 😊"
£23.00 from Jo Kellond
"All the best, Rob, to you Z ans Sasha!"
£HIDDEN from Henrik
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£10.00 from Anonymous
"Love to you three"
£28.89 from Anna Pak Poy
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£HIDDEN from Anonymous
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£5.00 from Dolly
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£18.91 from Emma
"GO ROB! GO SACHA!"
£61.20 from Kruk
"Keep up the amazing work, you three!"
£HIDDEN from Lidija
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£27.56 from Anna Pak Poy
"Sending love and solidarity!"
£20.00 from Joni Cohen
"Good luck Rob, and great to see Sacha doing so brilliantly xx"
£HIDDEN from Anonymous
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£52.50 from Carol Watts
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£57.50 from Marlene Hobsbawm
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£26.00 from Anonymous
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£21.75 from Anonymous
"Best of luck with everything"
£HIDDEN from Andreas
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£43.72 from Christos and Irene
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£98.59 from Themis
"Rob it was lovely to see you on Saturday after your run. I can see how hard your working to achieve your half marathon goal, you have my full admiration. Take care and best wishes Erika x"
£22.00 from Erika and Ben
"Citius, Altius, Fortius, etc."
£85.73 from Julien
"Hi folks, we're thinking of y'all. Love from us."
£52.50 from Anonymous
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£HIDDEN from Anonymous
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£40.00 from Anonymous
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£HIDDEN from Anonymous
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£HIDDEN from Anonymous
"What a wonderful thing to do - hope it doesn't rain on the day!"
£50.00 from MV
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£20.00 from Anonymous
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£50.00 from Anonymous
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£11.00 from Anonymous
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£HIDDEN from Anonymous
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£42.86 from TB
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£21.00 from Penelope Brand
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£HIDDEN from Anonymous
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£20.00 from Tony
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£34.50 from michael
"Get those running shorts on! <3"
£39.72 from Anonymous

Sacha is two and a half and lives in Brighton. He has a rare genetic disorder called 2q37 deletion syndrome. This means he is likely to grow up with cognitive disabilities and physical difficulties.

DNA need not always be destiny. If one intervenes in the right way — and early enough in a child’s development — it is possible to substantially improve prospects. This is because there are lots of environmental factors that affect the way our genetic predispositions actually play out, and because the brain is at its most plastic in the early years.

Though the services of the cash-strapped NHS are invaluable, what is available to Sacha is too little and too infrequent to make a real difference. We are thus fundraising for Just4Children to cover early interventions on both physical and cognitive levels, in the hope that action now will help minimise some of the more disabling effects of Sacha’s condition.

Sacha started having intensive therapy when he was one and completely unable to move. After his first treatment he was able to stand; following his second he took his first steps; with his third he became more confident and engaged. He is literally a walking demonstration of the life-changing effectiveness of intensive early intervention, but there is still a long way to go. We are thus fundraising to keep this remarkable path of development going for another year.

For more information on Sacha, 2q37, and how funds will be spent, please visit here

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