To raise money to fund APOS therapy for Charlotte to be able to walk tall with minimum pain.
Hello, I am Charlotte from rural Bedfordshire. I am twelve years old, chatty, inquisitive, determined and occasionally stubborn. Oh! and I just happen to have Down Syndrome. It’s OK it’s only an extra chromosome. It just means I need a little extra help. I have hyper mobile joints which causes my right knee to dislocate. I don’t like a fuss as it normally pops straight back in. It just makes it difficult and painful to walk long distances.
The orthopaedic consultant said the only way to fix my legs is to have an operation to place plates in either side of my knees, to straighten my femur bones. I would have to have another operation when I stop growing to have the plates removed.
My mum does not like this idea and has looked into finding an alternative therapy, one that does not involve surgery. I have had several operations since I was born including open heart surgery when I was 6. I don’t want to go into the hospital again.
Mum has been advised about APOS therapy which can be funded for adults by the NHS, but at the moment not for children. Mum took me to be assessed by an APOS therapist and the man asked me lots of questions about what happens when I walk and the pain it causes. He then asked me to put on a pair of special shoes.
I felt as tall as a giraffe in the special shoes and the man said as the shoes were making me walk tall and straight, I wouldn’t have the pain from my knee dislocating and my muscles would learn to strengthen.
I would love to have the special shoes and be able to walk like my friends.