Emil the AFM fighter
Emil is 19 months old from Bristol and has Acute Flaccid Myelitis (AFM). He desperately needs intense rehabilitation to give him the best chance to make a recovery.
Emil suffered a respiratory infection on Saturday 20th October 2018. We rushed him to A&E as he had difficulties with breathing. Emil was kept in overnight and given oxygen and inhalator every hour to open his airways until he felt much better.
On Sunday 21st we went home and Emil was back to his usual self. On Monday 22nd I noticed spots on Emil’s mouth and hands but he was still happy and playful until the following Sunday when he lay down all day and didn’t want to eat. I noticed he had a rash in his mouth. In the night time he woke up crying loudly and was very cold. Later on Monday he couldn’t keep his dummy in his mouth. His Dad and I took Emil to the GP who diagnosed hand, foot and mouth and prescribed antibiotics.
But we knew he was not right, his temperature was very low and so we called an ambulance. The paramedics convinced us it was nothing to worry about. On Wednesday we attended A&E again but were sent home.
By Thursday he was getting worse and he was not able to move at all. We took him to the GP but we were sent away again. Ee did not give up and went straight to A&E and said it’s not normal as he isn’t moving.
An assessment was carried out by the neurology team and an MRI scan and spinal tap was performed the following day. They found inflammation in his neck which causes paralysis and they diagnosed Acute Flaccid Myelitis (AFM) known as a polio like disease which affects 1 in a million people, the one person in this statistic being baby Emil.
He was paralysed neck down with no chance of recovery according to doctors. There is no cure or medication for this condition just intensive rehabilitation which he is getting outside of UK in the Polanika Centre in Poland.
Emil is improving every day and we believe that we will walk one day. Please give your support.