My beautiful boy Cayman is a happy, mischievous 12 year old boy from Macclesfield. Cayman has suffered with severe drug resistant epilepsy all his life and can have anything from 70 – 300 life threatening seizures a day.
In spite of trying all epilepsy drugs he is resistant to them all. He was recently diagnosed with Lennox Gastaut Syndrome in October of last year. On Thursday 24th January I was given an Advanced Care Plan (end of life plan) for my beautiful boy. As a mum I cannot accept this. Full plant Medicinal cannabis is something that hasn’t been tried on Cayman to try and control his seizures and epilepsy encephalopathy. From the 1st November 2018 Medicinal cannabis became legalised but to date no NHS prescriptions have been given.
We currently have a private UK prescription but unfortunately the cost of the medication is between £1000-£1500 a month and this cost will increase as his dose increases. We are desperately trying to raise funds month by month to keep paying for his Medicinal Cannabis. This is Caymans only hope to keep him alive !
As Cayman’s mum, I deserve the right to be able to hope and fight for my child. But most importantly, my little boy deserves a right to live.
Please donate what you can or maybe organise your own fundraising event. Anything no matter how big or small will be hugely appreciated.
Thank you so much.
A very desperate mum
Cayman’s Facebook page