Cayman’s Lifesaving Journey

Cayman, who is now 13 years old, has suffered debilitating life threatening seizures all his life. Cayman has drug resistant epilepsy.

£11842.41
Total raised
39 %
£30,000.00
Target
Donate Fundraise

191 donations

Recent donations

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£10.00 from Bethany Clf
"👍🏻❤️ X"
£22.00 from Claire Fox
"❤️❤️"
£10.00 from Beth Daley
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£20.00 from Annie Ashworth
"Well done Sophie xx"
£11.00 from Julie Crabtree
"Well done Gooders, Cayman is a super lucky boy to have you! 👍🙏💙"
£20.00 from Kirsty Dayson
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£11.00 from Niamh Hartley
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£11.00 from Jennifer Edwards
"Well done Sophie xx"
£10.00 from Andrea Fox
"Good luck lady! You'll do amazingly well!"
£10.00 from Monika GWIZDEK
"What you're doing is amazing G, such a deserving little man 💕"
£10.00 from Paige Leigh
"Rounded it off for u.. Good luk babes"
£30.80 from kelly cashmore
"Good luck guys . Love rick and clare .xx"
£11.00 from Clare Smith
"Super proud of you, you amazing human❤️"
£10.00 from Becki Thatcher hall
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£11.00 from Mo Forder
"Be proud of yourself what your doing is amazing :)"
£11.00 from Gareth Millar
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£11.00 from Jackie Whitehead
"Goodmannnnn ❤️ Kindest person I know"
£11.00 from Em Heaton
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£HIDDEN from Laura Sagar
"😍xxx"
£5.00 from Sarah Collinson
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£20.00 from Jessica Hulse
"All the very best x"
£HIDDEN from Anonymous
"Good luck!! X"
£10.00 from Jade Gould
"Good luck Matt, great effort"
£20.00 from STEVE LEWIS
"Good luck from Grace Ducky & family xx"
£10.00 from Alison Duckworth
"Best of luck Matt from the Waddys"
£22.00 from christopher wadsworth
"Good luck 👍"
£20.00 from Sam Roche
"Good luck"
£22.00 from claire burns
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£11.00 from Teazaphine Myatt
"Hickin xox"
£20.00 from Sophie Goodman
"Robin stafford"
£20.00 from Sophie Goodman
"Andy Mcfall"
£5.00 from Sophie Goodman
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£11.00 from Rachel McCrevey
"Good luck hun x"
£20.00 from Kelly Ross
"I’ve seen the hard work you are putting in. Good luck, such a fantastic cause. Do it for Pigs ❤️❤️"
£20.00 from Lydia Morton
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£20.00 from Maddie Maher
"Good luck Soph! xox"
£20.00 from Lydia Morton
"Go Sophie. A great cause. X"
£10.50 from Hazel Jones
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£HIDDEN from Anonymous

My beautiful boy Cayman is a happy, loving 13 year old boy from Macclesfield. Cayman has suffered with severe drug resistant epilepsy all his life and can have anything up to 850 life threatening seizures a day.

Despite trying all epilepsy drugs, he is resistant to them all, even rescue medication which has left him spending majority of 2018 until September 2020 in hospital including numerous intensive care stays and being put on life support 6 times in 4 weeks!

He was recently diagnosed with Lennox Gastaut Syndrome which is severe form of devastating epilepsy that no parent ever wants to hear. Cayman was offered an Advanced Care Plan (end of life plan). As a mum I cannot and will not accept this. Full plant Medicinal cannabis is something that hasn’t been tried fully on Cayman to try and control his seizures and epilepsy encephalopathy. He had a brief trial for about a month and during that time he went over 2 weeks seizure free before Manchester Children’s Hospital refused for it to be given whilst he was in their care. From the 1st November 2018 medicinal cannabis became legalised but to date no NHS prescriptions have been given.

We currently have a private UK prescription but unfortunately the cost of the medication is around £1000 a month and this cost will increase as his dose increases. We are desperately trying to raise funds for Just4Children month by month to keep paying for his medicinal cannabis. This is Cayman’s only hope to keep him alive.

As Cayman’s mum, I deserve the right to be able to hope and fight for my child. But most importantly, my little boy deserves a right to live.

Please donate what you can or maybe organise your own fundraising event. Anything no matter how big or small will be hugely appreciated.

Thank you so much.

A very desperate mum  

Cayman’s Facebook page

Info for donors