Carmela’s Fight to Stay Mobile

Just4Children are fundraising to give Carmela aged 6 from Market Lavington in Wiltshire every opportunity to thrive and lead a good quality childhood as her degenerative disease attacks her little body.

£10884.38
Total raised
54.42%
£20,000.00
Target
Donate Fundraise

88 donations

Recent donations

"Thank you to all the milkman'S customers."
£245.00 from Carmela Chillery-Watson
"Apologises we missed Spider-Man on the 9th. Well done."
£22.00 from Nicholas Jones
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£21.00 from Sue Cook
"Well done Darren!"
£22.00 from Giles Morgan
"Thank you to all the customers. This is the cash amount given to put in. The chqs get paid directly in to Just4Children and will be added to Carmela's total fund and not Darren Spiderman round."
£335.00 from Carmela Chillery-Watson
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£11.00 from Sarah Glassett
"With all our best wishes"
£33.00 from robert lloyd
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£11.00 from Dr Ed White
"Too early for me to see you, but it’s a brilliant thing you are doing to help Carmela."
£31.50 from Penny Hinton
"Big up Darren. Very humbled man. Jah"
£22.00 from Clifton Powell
"Well done, Daren; I'm looking forward to Friday!"
£22.00 from Anthony Mather
"Have Fun Spiderman and Wonder Woman !"
£HIDDEN from Joanne
"Such a worthy cause, just sorry I'm going to miss Spiderman"
£11.00 from Jane Whatley
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£22.00 from Fraser Wilson
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£10.00 from Anonymous
"You're doing a great thing. My nephew had myotonic dystrophy which isn't dis-similar. He received a lot of help and kindness in his life from people like you."
£11.00 from Susan Wakefield
"Hope this helps some small way x"
£6.00 from Tricia Smith
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£5.00 from Jess Whinton
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£11.00 from Anonymous
"Look forward to seeing you in that onesie Darren!"
£10.00 from Hilary Sterrett
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£33.00 from Anthony Batchelor
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£10.00 from Adam Dempsey
"Darren - the daftest milkman in the West - and good for you, helping to make a difference for Carmela!"
£10.00 from Sarah Tyler
"Good luck with the fundraising!"
£HIDDEN from Anonymous
"From a Chirton customer"
£5.00 from Katherine Dugdale
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£6.00 from Carolyn Morton
"A great cause. Good luck on your fundraising."
£11.00 from Elizabeth Denbury

Just4Children are fundraising to give Carmela aged 6 from Market Lavington in Wiltshire every opportunity to thrive and lead a good quality childhood as her degenerative disease attacks her little body.

Carmela has a rare muscle wasting disease called LMNA Congenital Muscular Dystrophy which weakens the muscles including the heart and respiratory system with an average life expectancy of 16yrs.

Carmela needs ongoing funding help as she grows and the disease deteriorates her strength and health with specialist equipment to play sports and be active, physical and emotional therapy support and home/garden adaptions.

Carmela is still able to walk a bit with the help of her walker and full body lycra support suit under her daily clothes but relies on her powerchair to access her countryside, beach, inclines and uneven terrains. But her knees and ankles are now struggling to take her body weight due to the progressive muscle weakness so she will have full leg braces fitted to help her stay on her feet a bit longer to help maintain bone density and health before she relies on the wheelchair full time.

Carmela has also lost more upper body strength, especially her arms which has affected her ability to raise her arms so now she finds simple tasks like scratching her head, itching her nose and even washing teeth more challenging.

With all her obstacles she faces daily, Carmela still finds the inner strength to fight to stay mobile with a very happy disposition.

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