Just4Children is supporting Tonia aged 20 from Eckington in Worcestershire who needs life saving surgery urgently which is only available in Barcelona.
Tonia started collapsing at 14 and was diagnosed by experts with Ehlers Danlos Syndrome with secondary disorders of Dysautonomia, mast cell activation disorder, gastro intestinal failure, bladder dysfunction as well as POTS which led to collapse.
Tonia became bed-bound and spent three and half years of her adolescence in hospital. Last year viewers watched as the BBC DIY SOS team carried out a ‘big build’ on her home and finally gave her hope, enabling her to return home to Eckington.
Things took a turn for the worse when Tonia started suffering increased respiratory arrests and seizures. Her pain became unmanageable and earlier this year she made a plea for anyone to help her.
Due to her symptoms it was suggested that she had an upright MRI Scan. The results were sent immediately to an expert neuro and spinal surgeon in Barcelona who found that he needed to perform urgent surgery to save her life. Unfortunately the treatment required was not available nor funded through the NHS, requiring the family to raise their own funds via the charity ‘Just 4 Children’. In early June 2018, after an intense fundraising campaign Tonia and her mother travelled to Barcelona where Tonia has undergone several massive operations. The care, compassion and attention to Tonia’s condition that she has received from the hospital in Teknon has been outstanding and noteworthy, especially so since Tonia has been one of the most complex cases the hospital has encountered.
Whilst great progress has been made, and Tonia is making progress, further surgery, treatment and rehabilitation lie ahead on Tonia’s Journey. The costs of stay in Intensive Care, of medication, rehabilitation and logistics overseas and even in the Uk are immense. There is still a fundraising mountain to climb on Tonia’s Journey. In early July this stands at £60,000 left to raise.
Donations may be made via this page or by TEXT to EHLE82£1 or EHLE82£5 or EHLE82£10to 70070
Tonia’s Journey can be followed on Twitter at @ToniasJourney
Thank you for your continued support.