Just4Children need to raise money to buy specialist back supports to try to reduce the amount of major spinal surgeries and slow down the progression of Edie’s condition.
Edie is aged 6 from Bristol and has a genetic condition which has affected her in many ways. She has a serious heart condition for which she required open heart surgery at just 9 months old.
Edie was solely tube fed for the first 3 years of her life and against the odds began eatìng and took her first steps at age 5.
Edie’s biggest battle ahead of her now is the progression of the curvature of her spine which left untreated will eventually crush her internal organs. We are trying to delay major surgery for as many years as possible due to Edie being medically complex and being at high risk of life threatening complications.
To give Edie the best chance of limiting her discomfort and delaying major surgery we need to raise money for Just4Children to fund a specialist splinted lycra suit called a Second Skin. She will need a new one each year with the hope that it will slow down the progression of her curve and keep her comfortable.
In spite of everything Edie is the most happiest little girl you could every wish to meet and is a real little fighter.
Thank you for your support.