Jemma’s Life Saving Neurosurgery

Jemma has Ehlers Danlos Syndrome, Chiari and a severely unstable neck compressing and damaging her brain stem. We Must Raise £100,000 by the 5th August for life saving surgery for Jemma.

Total raised
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66 donations

Our 23 year old daughter from Holbury, Southampton needs urgent life saving neurosurgery only available in Barcelona.

​Over the past 12 years Jemma’s conditions have progressed leaving her living with her parents, relying on care, a wheelchair and crutches. She has no quality of life right now, struggling to do tasks we all take for granted. Jemma has spent a lot of time in hospital having surgery, Injury, A&E trips. She spends most of the day laid on the sofa or trying to sleep because of chronic fatigue, neurological symptoms and severe pain.​

​Jemma has Ehlers Danlos Syndrome, Chiari, Craniocervical Instability, Atlantoaxial Instability, Subaxial Instability, Cervical Medullary Syndrome, Brainstem Compression.​

​A specialist neurosurgeon in Barcelona has taken on Jemma’s case. He is extremely concerned with how advanced and complex her problems are.​

“Your case is one of the most advanced and complex cases I have seen.​Surgery is your only chance of stopping it progressing, I strongly recommend surgery ASAP” – Dr Gilete​

It’s heart breaking to watch our daughter rapidly deteriorating, The pain is very severe her tremors are worse, She feels so unwell with a bad headache 24-7 she can’t sit up straight without back and neck support, her arms are weakening and she is experiencing autonomic dysfunction. ​​​

We must raise £100,000 to cover the cost of Surgery, hospital fees, Insurance, accommodation in a rehabilitation apartment for up to 4-5 weeks or however long it takes for her to be fit to fly home.

If she doesn’t have it done soon then she will deteriorate further leading to paralysis or death. The thought of our daughter ending up paralysed or worse is horrific. No one should have to deal with that at her age. She dreams of being able to open her own animal grooming and training business, learn to drive. Please help save and change our daughter’s life. For a full story visit…   

Thanks for all the donations so far.

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