Jemma has EDS, Chiari, CCI, AAI , Brainstem compression and Cervical Medullary Syndrome. Just4Children urgently need to raise £40,000 to get her the specialist neurosurgery she needs to give her a better life.
Our 24 year old daughter from Holbury, Southampton needs urgent life saving neurosurgery not available on the NHS
Over the past 12 years Jemma’s conditions have progressed leaving her living with her parents, relying on care, a wheelchair and crutches. She has no quality of life right now, struggling to do tasks we all take for granted. Jemma has spent a lot of time in hospital having surgery, Injury, A&E trips. She spends most of the day laid on the sofa or trying to sleep because of chronic fatigue, trigeminal neuralgia, complex neurological symptoms and severe pain 24-7.
Jemma has Ehlers Danlos Syndrome, IIH, Craniocervical Instability, POTS, Atlantoaxial Instability Cervical Medullary Syndrome, Brainstem Compression.
A specialist Private neurosurgeon in the UK has taken on Jemma’s case. He is extremely concerned with how Extreme the instability in her neck and skull is and is recommending surgery.
It’s heart breaking to watch our daughter rapidly deteriorating, The pain is very severe her tremors are worse, She feels so unwell with a bad headache 24-7 she can’t sit up straight without back and neck support, her arms are weakening and she is experiencing severe autonomic dysfunction.
£40,000 is needed to cover the cost of Surgery, hospital fees, Insurance, travel and accommodation.
If she doesn’t have it done soon then she will deteriorate further leading to paralysis or death. The thought of our daughter ending up paralysed or worse is horrific. No one should have to deal with that at her age. She dreams of being able to open her own animal grooming and training business, learn to drive.
Please help save and change our daughter’s life.