Jemma has Ehlers Danlos Syndrome and a severely unstable neck compressing her brain stem. She needs urgent surgery from a specialist neurosurgeon in Barcelona.
Jemma is a loving, caring, kind 22 year old from Southampton who has a rare genetic condition called Ehlers Danlos Syndrome. She has been in and out of hospital with dislocations, knee surgery and severe headaches which leave her with stroke like blackouts and mystery neurological symptoms including neck pain that no one can explain fully.
After her health continued to deteriorate a support group for EDS was contacted who recommended Jemma receive a specialist upright MRI scan to investigate further. In March 2018 she had the scans and sent them to a EDS specialist neurosurgeon Dr Gilete.
He advised that Jemma needs urgent surgery to fuse her skull and neck down to T1 and decompress her brain. Without it she is at risk of paralysis or worse.
Please help my daughter get the urgent surgery she desperately needs to stop her condition from deteriorating.