Just4Children seek help to raise funds to create an accessible, safe and therapeutic home and garden to enhance Izzy’s quality of life.
Our happy, cheeky six year old daughter Izzy is from the Wirral. We want her to access and enjoy our home and garden with ease.
Izzy had a very difficult start in life and spent the first six months in hospital fighting for her life. She was born with an extremely rare genetic condition called congenital hypermyelinating neuropathy that very little is known about and is untreatable.
Izzy is unable to do anything for herself and requires 24 hour care. She has very low muscle tone which means she moves only a little and is unable to shuffle, crawl or walk. Izzy is partially sighted, makes no sound and breathes through a tracheostomy. She is unable to swallow and feeds through a tube in her tummy called a gastrostomy.
Much to our delight at three years old Izzy finally began to smile and now there’s no stopping her! She started special school last September and it’s opened up a whole new world for her which she enjoys. She gets great pleasure from being moved around, from light and sound stimulation, from going outdoors, from being in water and from experiencing lots of new things. She especially loves being sung to by Mummy and bouncing around!
We would like to create a safe, therapeutic, stimulating yet relaxing environment which will expand her world and she can enjoy with friends and their families. The garden will include space for her swing and trampoline, raised beds with scented and textural plants, a music wall, water feature and a heated hydrotherapy pool that can be used all year. This is something that is essential to help improve her muscles and which she will absolutely love. In the home we would like to create an open living space so that Izzy is never alone. We would also like to build an ensuite bathroom with the specialist equipment that is required to make bath time a more relaxed and enjoyable experience for her.
We don’t know what the future holds for our Izzy but we do know that we’d like her to have as much stimulation and fun as possible whilst she can.