Just4Children hoping to raise enough for Harper to have SDR surgery in America, a spinal surgery not available on the NHS that could change her life allowing her to walk unaided.
Our Harper is 18 months old from Norwich.
On our second visit in a week to the hospital due to lack of movement, Harper was born via emergency C-section where she was found to have a rare True Knot in her cord which had cut off the circulation to her brain. After a 7 week stay in NICU due to severe hypoglycaemia we later found out that the cord had also caused multiple cystic lesions on her brain and she was diagnosed with Spastic Quadriplegic Cerebral Palsy and would never walk unaided, if at all.
Through medical advice we found SDR (Selective Dorsal Rhizotomy) surgery that is available in America. This is a spinal surgery which could help Harper take her first steps and is not currently available on the NHS.
Our aim is to raise the money for Just4Children for Harper to go to America and have the operation and the intense physiotherapy afterwards. Doing this we the hope that our little girl will not suffer from the day to day pain that cerebral palsy causes her so she can have the best quality of life possible.