Oscar’s goal to independence

Oscar born in 2013 is from Knaresborough in North Yorkshire. He has Bilateral Dystonic cerebral Palsy. We are wanting to provide Oscar with the chance to partake in intensive rehabilitation therapy.

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Oscar is aged 6 from Knaresborough in North Yorkshire. He suffers from Bilateral Dystonic cerebral Palsy. We are wanting to provide Oscar with the chance to partake in intensive rehabilitation therapy.

Our son Oscar is now nearly 6 years old and has cerebral palsy as well as severe epilepsy. Oscar has faced so many challenges in his short life and it is for this reason we would like to request your support.

It’s not just us who think Oscar is amazing, we have had it confirmed by so many others!

Two years ago we were delighted that Oscar won the Special Recognition Award in the 0-12 age category at the Yorkshire Children of Courage Awards held in Leeds on October 14, 2016.

Since this award Oscar continues to be faced with huge challenges that stand in the way of his development. He is now is at risk of hip dysplasia and needs corrective bone surgery on both of his hips.

Oscar’s disability means that we as a family are faced with constant decisions around the type and level of care and therapy that we pursue for him. Sadly, many of these choices are limited by the paucity of the services in this country and the huge costs that come with them.

Regular and intensive physiotherapy is required to ensure that Oscar gets to a point where he is able to be as mobile and independent as possible. We do a wide variety of physiotherapy routines for Oscar – at home and in sensory centres, at swimming pools, on horseback – to try to give him the best opportunities possible. Oscar also has medication to ensure that his muscle stiffness does not hinder him too badly.

Obviously throughout Oscar’s life we will need a host of equipment. Sadly, an ever increasing amount of this is now no longer funded by the NHS or is on trial but not for long term use. Oscar has recently had the eye-gaze technology he has been using to aid his communication withdrawn by the NHS.

As a family we would be massively grateful of any support you can offer.