Freddy has a rare cardiac condition and needs to get to Boston Children’s Hospital in the USA for life saving heart surgery.
Freddy is a cheeky 4 year old boy from Bridgwater. However, he has a extremely rare and life threatening heart condition. At 4 months old Freddy had an out of hospital cardiac arrest. We were told that there was only a 6-8% chance that he would survive. If he did survive we were told he wouldn’t be the child we knew.
But miracles happen and Freddy survived. Freddy is now 4, but still battling this horrid condition.
Freddy was diagnosed with a cardiac tumour- a Fibroma in his left ventricle. The tumour is massive, 5 cm by 3.5cm. The tumour causes dangerous heart arrhythmias which make Freddy’s heart beat in excess of 200 beats per minute and can lead to sudden death by him going into cardiac arrest.
To date Freddy has had 3 heart surgeries and has a defibrillator implanted in his tummy. He now needs to go to Boston to have life saving heart surgery to remove the tumour, which cannot be performed in the U.K.
Thank you for your support.