We need to raise funds for Just4children so Dexter can access intense therapy courses. He also needs a custom built therapy trike and other equipment to use at home.
This is Dexter, a happy smiley 5 year old from Warwickshire. Dexter and his twin brother surprised us by arriving 8 weeks before their due date and had to stay in hospital for 44 days.
One week before we came home a routine brain scan on Dexter revealed a condition called Periventricular leukomalacia (PVL) which is a type of brain injury that is most common in babies born too soon (premature) or at low birth weight. We were told that PVL would likely lead to Cerebral Palsy but we would just have to wait and see how Dexter developed. We will never forget that day, we were devastated.
As Dexter grew older and didn’t meet milestones we knew that the diagnosis would come and when Dexter was around 1 year old we were told he had spastic quadriplegia cerebral palsy which means both his arms and legs are affected.
Dexter has difficulty controlling his muscles and movements while his muscles are often tight and stiff and can sometimes go into painful spasm. His core and head can sometimes be floppy but this is slowly improving as he gets stronger. Dexter isn’t able to sit unaided, crawl or walk and gets very frustrated that he cannot move around and play with his brother and other children, which is heart-breaking to see.
There is no cure for cerebral palsy, but physiotherapy and other therapies can help. NHS physiotherapy is available to us once every fortnight but it’s just not enough.
We know that we have to do everything we can to give Dexter the best opportunity to live an independent life as he gets older by improving his strength and mobility. There are so many breakthrough treatments and therapies out there and we aim to raise funds so Dexter can access these.
Dexter is such a determined little boy and is so eager to learn we are certain he will show us all that he is capable of great things!