I am aged 8 from Acton in London. I was born at 36 weeks 5 days early and had to be resuscitated as I had no oxygen for 25 minutes as the placenta came away from the uterus wall due to a placenta abruption. I was put on a ventilator and heated mattress for two weeks. I had a MRI scan that showed up abnormal brain activity and was diagnosed with severe hypoxic ischemic encephalopathy and horseshoe kidney.
Throughout the last five years I have been diagnosed with four limb spastic quadriplegia cerebral palsy and gastro reflux and epilepsy. I have had surgery on both hips to correct them and have had tests on my eyes sight and have been diagnosed with visual impairment. I have had to go back to the nasogastric tube for 2 years which goes nose to stomach and then was changed to a peg that runs straight to my stomach which I’ve had in since January 2012.
For the last 4 years I’ve had a nasogastric tube taken out and replaced with a peg. The peg has been changed once and plates taken out from hips. I have been learning how to use my hands and control my head moving my head from side to side and listening to sounds and recognised voices. I have also been learning how to vocalise using babble sounds. In addition, I have had a hand splint for one of my hands, arm gaiters and leg gaiters. Over the last 2 years I have also had to wear a spinal brace as I have a curvature to the spine.
For the last 8 years I’ve been on physiotherapy, speech and language therapy and occupational therapy programmes which consist of stretches and using specialist equipment like a standing frame, indoor posture chair, wheelchair, specialist bed, shower chair, hoist and petro boots.
We are fundraising for Just4children so that Natasha would be able to receive ABR therapy. This would consist of an assessment of my child and training for me in Scotland. I would continue this therapy on my daughter for 2-3 hours a day.
If anyone could help with donations it would be much appreciated as this does cost a lot of money. This will help Natasha by giving her a better quality of life.