Max’s Mission to Move

Max is aged 5 from Rugeley in Staffordshire and desperately needs SDR surgery to improve his quality of life.

20160111_150151 (1)
£37072.88
Total raised
93 %
£40,000.00
Target
Donate Fundraise

25 donations

Recent donations

"Best wishes from a #charityninja"
£3.00 from Anonymous
"Good luck"
£10.50 from Anonymous
"Money from Stoke's fair donations, Temple spa 50/50 and Fathers Day Keyrings"
£185.00 from brian price
-
£25.00 from Anonymous
"Teddy chair"
£5.25 from Lesley Brown
-
£5.25 from Joanne Judd
"Money Raised from the Afternoon Tea at the Vintage Tea Room"
£234.50 from Michelle Price
"Hope all goes well for Max. Sending hugs to Mum xx"
£10.50 from Michelle Bawden
"Good luck"
£5.25 from Abigail Smith
-
£10.50 from Tom Green
-
£9.45 from Miriam Couch
"From the heart"
£HIDDEN from Anonymous
"For auction wins xxx"
£7.35 from Dominique Orlowski
-
£6.00 from Philip Hogkiss
"Auction money"
£25.00 from Michelle Price
-
£50.00 from Anonymous
"Thanks Nettie x"
£20.00 from Michelle Price
"Auction money"
£8.00 from Laura Heathcote
"Auction"
£4.20 from Michelle Price
"Auction items 😁"
£15.00 from Emily Wright
-
£12.00 from Emily Aspley
"Lesley money for dress"
£7.00 from Michelle Price
-
£3.15 from Louise Whotton
"Money from gymophobics and the remainder from the music night"
£465.00 from brian price
-
£5.25 from Barbara Baglee
-
£13.65 from Joanne Judd
"Here you go. See you at all the cricket club soon :-)"
£5.25 from Bryony Williams
"Kipping bag money x"
£18.00 from Sarah Hughes
-
£5.25 from Kelly Jones
-
£35.17 from Sharon Hodgkiss
"For the pug auction x"
£10.50 from Kyly Wood
-
£HIDDEN from Anonymous
-
£105.00 from Anonymous
"Sweet cones"
£4.00 from Michelle Price
"2nd part of music night money"
£234.12 from Michelle Price
-
£HIDDEN from Anonymous
-
£21.00 from Carly Watton
"Sending our love to your beautiful son....x"
£10.00 from Zeynab Mohammad
"Good luck , i hope it all goes well"
£31.50 from Anonymous
"Money for 50/50 money and sweet cones sales"
£37.80 from Michelle Price
"First part of music night"
£768.00 from brian price
-
£4.00 from Joanne Judd
-
£HIDDEN from Anonymous
-
£20.00 from Michelle Price
"This is my donation to Max's mission from the charity event last night. Thanks for having me 😊 xxx"
£20.00 from Tina Williams
"Thanks for the Jason Manford signed photo, dvd & cd. Amanda Kittler-White"
£35.00 from Amanda Kittler-White
-
£45.00 from Karen Haywood
"I want to be able to be running around school with you xx"
£10.00 from Hazel Stockill
-
£5.00 from Anna Lee
"Proceeds from the Easter Event raised by the lovely ladies at Gymophobics Rugeley"
£388.00 from Gymophobics Rugeley
20160111_150151 (1)

Max is aged 5 from Rugeley in Staffordshire He was born at 34 weeks weighing 5lb 6oz. Within a couple of days Max became very poorly due to lack of calcium and sodium which unfortunately caused neonatal seizures and his oxygen to drop. We were told upon discharge that Max has damage to his brain called Periventricular Leukomalacia (PVL).

Max has now been given the diagnosis of Quadriplegic Spastic Cerebral Palsy. This means his limbs are too tight and he has difficulty doing tasks that we all find easy. He has nearly mastered sitting through lots of hard work but still needs help standing and is unable to move independently. The brain damage also affects his eye sight and as yet we still don’t know how much he can see. He’s also recently been diagnosed with epilepsy.

Max has been accepted to have SDR (selective dorsal rhizotomy) at Alder Hey.  This would be a permanent fix for his tight muscles that control life and stop his progression. He is already on Baclofen and having regular Botox but the results don’t last. This could be life changing for Max and although it may not make him walk it would mean he would have a pain free better quality of life without the muscle spasms.

 Unfortunately SDR isn’t available anymore on the NHS so with the operation, pre and post physio and equipment so £40,000 needs to be raised.
Max is an amazing happy cheeky sociable little boy so please give generously to  help him in his mission to move.
Info for donors