We are raising funds for Just4Children to help Katie-Louise get to Scotland for ABR therapy that will hopefully ease some of the symptoms of her Cerebral Palsy and Dystonia.
Katie-Louise is 1 1/2 years old and lives in Belfast, County Antrim. She was born ‘flat and floppy’ and due to a lack of oxygen required resuscitation. This led to her having Cerebral Palsy and Dystonia (involuntary muscle spasms). Katie-Louise is fed via a tube as her suck and swallow were not present after birth. In October 2016 she had a PEG tube fitted directly into her stomach and the NG tube was removed.
This has resulted in Katie-Louise being happier and does not have to go through the ordeal of the NG being replaced several times a week. Katie-Louise is learning to sit (though her Dystonia means she still requires some support) she is unable crawl, walk or talk which makes every day a struggle for her but has great determination to succeed.
Katie-Louise is fun loving, likes music, socialising and most of all love having all the attention on her. Seeing how she smiles and laughs when she’s trying to interact with other children is just amazing and provides a glimmer of hope for us that maybe one day we will be able to get her into a therapy that helps her do more things. Life is so frustrating for Katie-Louise as she cannot communicate her needs like most other children of her age.
ABR will help us to be able to give Katie-Louise a better quality of life. It promises to strengthen the muscular and skeletal structure of her body when used as a symptom of CP is an internal weakness.