Help Alexia walk

Just4Children are raising money to get Alexia much needed private physio and a trip back to St Louis Hospital in America to have her post SDR operation check.

£46644.49
Total raised
93 %
£50,000.00
Target
Donate Fundraise

41 donations

Recent donations

"From Jeanie in Cananda"
£100.00 from Jeanie
"This is the total cash received from everyone that came to the never ending 50th birthday party curry evening"
£335.00 from caz
"Well done Caz anad a very happy birthday from us! Jude, Freya, Nina & Phil xx"
£30.00 from Anonymous
"Sorry we can't make it tonight but want to support the great cause. Super pressie idea Caz"
£20.00 from Sally x
"Looking forward to a great evening xx"
£50.00 from Sheila & clive
"well done.... Sue"
£10.00 from Anonymous
"well done caz. Sally"
£10.00 from Anonymous
"well done Rachel, Sean, Bailey and Lola"
£5.00 from Anonymous
"Well done Caz. Rachel, John, Edie, Connie, Ted, Gus.x"
£10.00 from Anonymous
"well done Pat & Geoffxx"
£150.00 from Anonymous
"great cause, well done. Donna & Lynne"
£20.00 from Anonymous
"Sue Loveland ..... "
£20.00 from Anonymous
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£4.00 from Paul reeves
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£4.00 from
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£4.00 from
"Good luck! Random donation because of Jack Munroe xxx"
£4.00 from Lyn Murphy
"Good luck, Jan and Vivienexx"
£20.00 from jan
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£26.03 from Anonymous
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£4.00 from Anonymous
"Good luck Caz... Enjoy every step :) xx"
£26.20 from Anonymous
"Good luck Caz"
£20.00 from Anonymous
"Have a great run Caz"
£26.20 from Sally Newman-Russell
"Good luck Caz will be there cheering you on xx"
£30.00 from Sheila & Clive
"Good luck Caz!"
£HIDDEN from Jayne
"Well done you! Our friends wee boy Xavier had an operation that I think will be similar to Alexia's and the outcome has been remarkable. He lives in London but comes up here for rehab, go Alexia go!"
£20.00 from Sarah McCoshim
"Great cause"
£5.00 from Donna Rodriguez
"Go Caz!! All our love Phil, Nina, Jude & Freya xx"
£20.00 from Anonymous
"Good luck! "
£5.00 from Cerys Williams
"from previous fund raising page"
£120.00 from anon

Just4Children are raising money to get Alexia much needed private physio and a trip back to St Louis Hospital in America to have her post SDR operation check.

Alexia-Rose from Weeley near Clacton on Sea in Essex was born at 28 weeks and 2 days weighing just 2lb 15oz. We spent 2 months in a special care baby unit and at under 5lb Alexia came home.

That’s when the problems started and Alexia kept stopping breathing. We ended up having to resuscitate her and we went back to hospital via ambulance many times.

After lots of problems and Alexia not hitting any milestones at 8 months old we received the devastating news that Alexia had quadriplegic spastic cerebral palsy, global developmental delay. And, at 2 her epilspsy started. We were told she would never walk or talk and we knew then we had to do all we could to help improve her life.

That’s when we found out about the SDR operation and that it could improve Alexia’s life in many ways, mainly to live pain free. She is unable to sit unaided, stand or walk. We were hoping with the SDR and intense rehabilitation we could improve Alexia’s life no end.

We were lucky enough for Alexia to go to America and have the SDR at the age of 5 on 20th September 2018.  She is doing really well but needs ongoing input by her private physios to help her learn to do things such as feeding herself and walking in her frame.

Whilst in America we saw a specialist regarding her stiff arms and they have made her the most amazing night splints. They have warned us a year or two down the line she will need her arm muscles lengthened which is obviously going to be quite a cost. She is also autistic and so really struggles with communication and new people.

Although Alexia faces many challenges and hard times in life, she is the most happy child and lives life to the full. She loves theme park rides, trains, car journeys and days out.

Thank you for taking the time to read Alexia’s story.